Jane arrived to Lucille Packard Childrens Hospital at Stanford last night around 11pm. We waited anxiously to greet her. After the team got her all settled we talked to Dr. Shin, one of the cardiologists who told us they have her scheduled for surgery on Tuesday morning. They are going to review her case this morning, look at her heart ultrasounds, and come up with a plan.
We wait…just a little longer…
Elisabeth and I left from John Wayne Airport for Stanford at 740pm and arrived at the hospital at about 10pm after dropping off our luggage at Bill & Beth’s, a hospitable family that live about a mile from the hospital.
It was obviously hard leaving Jane; I begged for atleast the mommy to get on the medical plane, but they said they just can’t accommodate more weight — I didn’t know Elisabeth weighs that much, hmm.
We waited til about 11pm, while the new team got Jane’s equipment ready for when she arrived, to hook her up quickly.
We were told that we’d be up here approx 2-3 months, but that’s no promise; it could be longer, could be shorter. Nonetheless, we’re looking today and tomorrow for a place to stay long-term.
Tuesday is the scheduled first surgery. The team is going over the xrays and echos to formulate a gameplan.
I thought about it, and I have 4 goals while up here in Stanford:
1) Jane’s health to improve
2) Elisabeth to have comfortable home
3) work for me
4) Phil’z coffee (best I’ve ever had)
About an hour ago, a complete stranger brought me mexican food and $200. She’s a friend of a friend of a friend. I can’t believe the graciousness we’re receiving. This is just an example of the helpful/heartful people trying to lighten our load. Super-sized thank you.
A few of you have asked for an address for us… Our social worker is looking into accomodations for us while we wait for Ronnie Mac to open up. As soon as that is finalized I will post a mailing address.
Today I got to hold my precious daughter, Jane, in my arms. Oh, how I love her!!!!
And for that short moment time slowed down…and I enjoyed every single moment, every single breath, every single heartbeat.
Jane’s going in at 7am. Surgery 6-8 hours.
More detals to come latr, but I’m off to a nap.