Because Jane has had a few set backs it takes her a while to recover from them. She is managing and doing ok…not great, but just ok. She is a bit more swollen than usual and a lot more sleepy. The docs keep reminding us how sick she is so all of these set backs are part of the game. We had a conference with our attending doctor yesterday just to get on the same page and see where we are at. The good news is that Jane really isnt a heart patient anymore. Her surgery went well, she continues to recover great and her body has adapted to her new physiology. This is HUGE given how sick she was and how severe her heart condition was. Praise God!!! Jane is truly a miracle!!! Her lungs are still a bit behind, but that is to be expected since she has been on a ventilator since birth. Just think of it like a training program…if you dont use it, you lose it. That is the case for Jane and her lungs. It will just take some time for her lungs to get stronger and when she is ready she will come off the ventilator. The bad news, though, is that Jane is now a liver patient. Every test possible is being run to try and figure what the problem is. In the meantime, Jane is being treated for an infection just to be on the safe side. Infections can go sour really fast…it’s best to be on the safe side with compromised babies… all babies, really.
Daniel is back home, well– back to our new home. He was gone for work for a few days and that was horrible in itself. I’m soooooooooo happy he is back and Jane missed her Papa!! It’s great to be together as a family We’ve received some very encouraging words from many people over the course of this time and I have truly been uplifted. A HUGE THANK YOU!!
**Jane had a quick visit from her doctor from CHOC this morning. Apparently, he flies over every once in a while to check on his patients. That was pretty cool. She has not been forgotten about….and they are anticipating her arrival back at CHOC (but who knows when that will be).