Happy Valentine’s Day :(

When we arrived to Jane’s room at the hospital this morning, we came in to Jane’s room full of somber faces. I was looking for a smile, but we soon found out why there weren’t going to be any, and all of our high spirits disappeared real fast.

Jane’s liver has been of big concern over the last week, with a couple days of hope in the middle showing improvement in overnight liver measurements, and possibly liver correction. The doctors have determined those slight improvements are insignificant in the overall outlook. I’ll describe it simply: there is a protein in our bodies that goes through the liver then gets pooped out. Jane’s liver is blocking that protein, and it’s becoming dangerous. The doctors have been leaning towards her liver problem being congenital (developed before birth) the last day or so, and considering a liver biopsy to figure out what the heck’s going on, cuz she’s showing progression of liver failure. Today, they decided that the problem IS congenital, and she DOES need a biopsy. They’re getting it ready today, and biopsy is coming tomorrow.

A biopsy means they open her up and cut out a tiny piece of liver, no big deal, cuz livers have the ability to regenerate tissue. BUT Jane doesn’t make things simple; a result of her liver problem is her blood isn’t able to clot very well, so there’s a HUGE risk of her bleeding out–alot. During the operation, they will of-course have blood transfusions ready. I asked the doctors to quantify the possible amount bleeding. He said, “a life threatening amount”, which is why there weren’t any smiles today.

To add to her high risk of heart failure, add liver failure, and that means God’s little lamb is FAR from healthy.

5 comments on “Happy Valentine’s Day :(

  1. Natalie Ledieff on said:

    Daniel and Elisabeth…..I continue to pray for you and for your precious daughter, Jane. Just pray scripture over Jane when you just don’t know what to say to God.

    Psalm 139:13,14: For You formed my inward parts. You covered me in my mother’s womb. I will praise you, for I am fearfully and wonderfully made. Marvelous are Your works, and that my soul knows very well.

    Jeremiah 1: 4,5: The word of the Lord came to me saying: Before I formed you in the womb I knew you; Before you were born I sanctified you.

    I lift Jane up to you, Lord. I ask for You to guide the Doctor’s hands during the biopsy. I ask that You clot her blood. Cover her family and give them peace. In Jesus Name……Amen

  2. John and Sada Siliznoff on said:

    Dear Daniel and Elisabeth,
    We just wanted you to know that our prayers, love, and thoughts are with you always. As we have read your blog about Jane our hearts have rejoiced for you in times of happiness and wept for you in times of sadness. We pray for the Lord to continue to strengthen you and provide Jane and you peace and comfort through this!

    Love,

    John and Sada Siliznoff

  3. david pavloff on said:

    We are with you in prayer for baby Jane and the two of you. Again, I repeat myself, but it is important for you to know that so many of us are on our knees with you on days like this.
    “Wait on the Lord: be of good courage and he shall strengthen thine heart: wait, I say, on the Lord.”
    Psalm 27:14
    In the name of the ultimate healer, Jesus Christ, we send our love.
    David and Tanya Pavloff

  4. Nadya R. on said:

    Amen to what has been shared; Daniel & Elisabeth, the body of Christ will come before the Father in the name of the Son and in the power of the Holy Spirit to lift Jane and you and your families up in prayer; and for all the medical team & all those involved in her care;

  5. Kathy M. on said:

    Daniel and Elizabeth
    No words can express our heartfelt prayers for precious baby Jane. Keep faith, we have a Mighty God nothing is impossible for Him.
    John & Kathy Mendrin

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