Jane has started off with a good day again. She is calm and resting. Her oxygen saturation continues to be stable overall, even though she has a few dips here and there. After rounding with the cardiologist this morning she told the staff that they don’t need to be so eager to ween her off of the oxygen they are giving her. She said it is normal for babies like Jane to have high pressure in the lungs and we want to slowly help reduce the pressure by giving oxygen rather than ween her completely.Lets see if I can explain this so it makes sense— all of us breathe in 21% of oxygen from the atmosphere. That is normal. Because Jane has problems with her lungs she is on a ventilator that helps her to breathe and she is given oxygen as a medicine; she is given more when she needs it and less if she can tolerate breathing normal air. There have been times that she was breathing 21% oxygen, which is great because that means she is able to breathe normal air like you and I. Other times she has been on 100% oxygen.  So, the cardiologist was just letting us know that although weaning her down to 21% is ideal, it is perfectly ok if she is given a higher concentration for the time being.  Not sure that any of that makes sense without going into all the whole medical explanation with you.

Other than that, her heart rate, blood pressure and respiratory rate all look pretty good. Her blood tests came back looking good with the exception of her platelets so they will be transfusing platelets today. The nurse just finished doing “cares” on Jane and she was a ROCK STAR!!! (cares: suctioning, changing her diaper, taking her blood pressure and temp). She is getting a good stretch now and relaxing! Still no talk of surgery or feeding her food yet. If she continues this positive trend then they will re-evaluate in a few days.

On a different note, I saw the light of day for the first time today since Tuesday. I had no idea it was cold and rainy outside, or was it sunny? I forget… Haha!