We just finished rounding with the docs for the night and have a clear picture of Janes status for the day. Sometimes there are so many people in her room and so many procedures going on that we get lost in the shuffle of things. Here it goes: Jane has not had any great improvements today, however she has not back tracked either. Her oxygen sats continue to stay steady with a few “spells” throughout the day. The spells, as they call them, are periods when the oxygen saturation in Jane’s body decreases. It usually takes about an hour or two for her to fully recover. Her spells have drastically decreased, though, from a few days ago. Currently, Jane is on 2 medications that are helping to reduce the workload of her heart. One of the meds reduces the pressure in her lungs while the other reduces the pressure throughout her body. The neonatologist told us that there is a very delicate balance between these two medications but the goal is to reduce the workload of her heart so that it can begin to work more efficiently. Jane was also given her first blood transfusion today because her RBC count came back low. Blood was given so that her heart could be more efficient at oxygenating the body. Every time a healthy individual gives blood it takes several weeks to replenish blood that is made in the bone marrow. This is also the case with Jane but the docs don’t want to risk having to wait for her to make more blood or put more stress on the heart to supply more oxygen to the body. (the reason Jane is losing blood, per se, is because of the daily labs that they do. Might as well replenish!)
Scary things of the day: 1) the nurses were trying to place an IV so they could give her blood. They poked her 3 times and failed; 2 of those times were in her poor little head. I just stood by as I watched them stick a needle in her head, yuck! 2) The unit wanted to move her to another unit again today because the nicu is full. Daniel and I sort of threw a fit… I mean, what next? Are they going to put her in the lobby when that unit gets full?? They decided to keep her put!
Best parts of the day: 1) I got to change her diaper THREE times and take her temp. It was a dream come true!! Ok- I know, I know..,it’s only a diaper but I’ll take that any day!! 2) Jane tried so hard to open her eyes to look at Papa. He was right there talking to her and she just couldn’t quite muzzle up the strength. It’s hard for her since she is so tired all the time. 3) Daniel found out he is a perfect match for her blood!!!!!! B+, CMV- (but we’ll still take a few more donors) 4) Jane had more visitors today and had a great time with them all. Her great uncle Sam told her she needs to get up and go to work already. And that my friends, is the Kosareff in them all!! Haha
I still long to hold her in my arms, but we’re taking one day at a time. Thank you again from the very bottom of our hearts for your prayers, love and support in ALL the different ways yous are showing it. Sorry if we are not responding to all our messages, texts, voicemails, emails.., we are receiving them with TEARS!!!
***i must say my anatomy and physiology education sure is coming in handy.
I leave these words with yous all as words of a blessing:
31 “When the Son of Man comes in His glory, and all the holy angels with Him, then He will sit on the throne of His glory.32 All the nations will be gathered before Him, and He will separate them one from another, as a shepherd divides his sheep from the goats. 33 And He will set the sheep on His right hand, but the goats on the left. 34 Then the King will say to those on His right hand, ‘Come, you blessed of My Father, inherit the kingdom prepared for you from the foundation of the world:35 for I was hungry and you gave Me food; I was thirsty and you gave Me drink; I was a stranger and you took Me in; 36 was naked and you clothed Me; I was sick and you visited Me; I was in prison and you came to Me.’ 37 “Then the righteous will answer Him, saying, ‘Lord, when did we see You hungry and feeyou or thirsty and give You drink? 38 When did we see You a stranger and take you in, or naked and clothe you?39 Or when did we see You sick, or in prison, and come to You?’ 40 And the King will answer and say to them, ‘Assuredly, I say to you, inasmuch as you did it to one of the least of these My brethren, you did it to Me.’