Jane is just happy to be alive. Last night we left late evening cuz Jane was sleeping happily, sharing her nurse with another baby. Got a call half-hour later, saying she was having complications.

We arrived to a dozen people working on a coded baby, Jane. She had a really slow heart rate for approx 45 minutes and intermittent CPR. It took a long time, but she came around somewhat. She’s still on the meds to keep her heart rate up. So all was clear, not great, but clear.

At 4am, Mama and I were waiting thru the night, and once again Jane was having difficulties. She couldn’t quite get her lungs working up to par, so her blood had only a fraction of oxygen needed. After another half hour, Jane pulled thru once again. This second episode last night wasn’t considered a “code”, my guess I that everyone was already in the room while it was escalating.

Now, Jane has 2 nurses of her own today.

And we still haven’t got any sleep.

Jane is in very critical condition today. The team of docs have been in here room all morning and afternoon making sure they are keeping her comfortable and safe while they work on stabilizing her. The doc told us this morning that safety is the number one concern right now. Once she becomes stable and recovers from her code in a few days then they will begin to make further plans for her care. But, right now the focus is to treat her symptons and keep her vitals stable so that her body is able to recover. In the meantime, Jane’s TWO nurses have been working non-stop today. During rounds the Dr. kept hammering out questions for all of the team….poor girls were so nervous and stumbling over all of their answers. Even the fellow was questioning her knowledge. BUT- I’m glad they are focused and serious about taking care of my daughter.

The CHOC team has welcomed us back “home”. The docs are ready to dive into her records and fight this out with us and with Jane. We’ve gotten so many complements from all of the staff of how involved and knowledgeable we are about Jane’s history and condition. In fact, one of the docs said I gave him more information about Jane in 5 minutes than he would have received if he called the staff over at Stanford. I’m so proud to be Jane’s mom!!