Movin & Grovin

Jane has been wide awake today- sticking out her tongue, wiggling her fingers and toes and gazing up at her mama, papa, and all her visitors. If their is one thing that brings joy to our day it is that…the “real-ness” of our little baby girl. For a moment we can over look all the tubes coming out of her body and all the beeps surrounding us and just watch her move!

It seems today that Jane is recovering well from her last few days. Her heart rate and pressures have stabilized. Her liver has not shown signs of improvement so the team is really digging hard to find out what the issue is. Her kidneys are making a come back, but still need time to heal. Jane has started her feeds again, aka MBM, and hopefully this time she can stay on them for a while. She is borderline malnourished because the goal was to keep her fluid volume negative so she has to be monitored very closely as to how much volume she can receive throughout the day. (volume= all the fluid she receives like meds, nutrition, etc.) I know I have said this over and over, but Jane is just very delicate so we are always trying to find the perfect balance for her. The goal is to get her to a point that she is only on MBM and ┬áthen add additional nutrition to her milk. We need this girly to grow so that her body can handle the demands of her “new” heart and recovering lungs.

AGAIN, we just want to say THANK YOU to EVERYONE who is helping us in ALL of the various ways yous are all reaching out. As I read your blog comments, your cards, open your gifts, eat your food, read your emails and texts, listen to your voicemails and hear your messages passed on by family and friends I am always humbled and brought to tears. I can’t handle all that Jane is going through, but I also can’t handle how much support we are receiving from all over the world. We are thankful beyond words…!! My sincere prayer is that God showers you all with blessings tenfold

7 comments on “Movin & Grovin

  1. Rebecca Klubnikin on said:

    Elisabeth and Daniel,
    I read your blogs every other day or so, but you are often on my mind and heart. Many times during the day the Holy Spirit moves me to pray for you and your little one. I don’t have an enlightening scripture to give you, but you are lifted up in prayer and I know God is surrounding you with His unending love and support. My heart aches for you and your struggles and I will continue to lift you up to Christ, the Great Physician and Healer.

  2. This has really been a journey for u & Daniel, and for all of us that r close to little baby Jane! God has been so generous with his love & mercy upon ur new family, with prayers of healing, faith, comfort & strength, it has been awesome. He truly is carrying all of us. I pray that Janes little body parts start to work in unison soon & her little body will stabilize. One day a Dr. came in & said, “This little one is full of Spice & Vinegar! Shes not giving up! And we will give her whatever she needs to get her where she wants to be!” We said, “Yes shes like her Mama! Strong willed!” Love, Mama K

  3. Kym Lightner on said:

    You do such a great job keeping us all informed! I am glad that Jane is rising to her challenges. Just know that you have amazing prayer support from your CBS sisters. We love you all.
    Kym Lightner

  4. Dydya Rick on said:

    This blog site has become such a daily must read for me and I am sure so many others. I go on every morning and I read these incredible daily updates and how strong Jane and you both are. I cry, smile or laugh at the many little things that you guys write and the ups and downs Jane is going through. We are all on an emtional roller-coaster and after reading about Jane’s progress this morning, it is so clear that God has a special plan for Jane in your lives, she really is a fighter as Lis’s mom noted above. We will continue to pray daily and follow her progress, God Bless you both and my he give you Comfort and Wisdom in you daily lives.

  5. D. Bill & T. Vetta Shubnin on said:

    Daniel & Elizabeth,

    We just want you to know that our daily thoughts and prayers are with you. We just found out about this so add us to the list of prayers that are going out to your family daily. It must have been wonderful to hold your daughter even for that short of a time and we’re praying you will again soon. All our love.

  6. Manya K. on said:

    Reading that Jane is moving and eyes open and tongue brought tears to my eyes. Jane’s improvement is wonderful news! I have to say that I have your blog open all the time checking it to see how everything is going. God is taking care of you! Continuing to pray for you 3 and your family and friends.

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