Doctors Update

I had a nice talk with the cardiologist this evening. Here are Jane’s updates:

1. From a cardiac perspective, Jane is doing very well. As she grows and develops she will need to be monitored closely to make sure that her systems are balanced and her heart is working efficiently, but she has come such a long way.

2. Her kidney function has normalized

3.From a respiratory perspective, she is doing great. She can handle being extubated over the next few days, but she uses a lot of energy to breathe and since the goal is to fatten her up we dont want to make her work too hard since she doesnt need to.

4. From a feeds perspective, we have been able to increase her calories and over this next week we are hoping to see some great weight gain if she continues to tolerate her food.

5. Her liver is now the major issue on the table. The good news is that it hasnt gotten worse over the past 4 days. We will continue to watch the function of her liver closely and hope that her bilirubin levels drop.

Jane has certainly come a long, long way! The Dr told me today she is glad that she hardly comes into Jane’s room anymore. That is a good sign….when the docs are in your room all the time that means you arent doing great. Over the last 6 days Jane has been a rockstar! We still have a long road ahead as she grows, learns to feed, more surgeries, etc….but the progress that has been made over this month is perfect. Like the doc said, Jane has really been the fighter- they have just supported her through it.

Praise God for His grace, His mercy, His love, His healing, His miracle…..!

2 comments on “Doctors Update

  1. Oh, Mz. Jane, it was so nice to spend some one on one time with you today! I’m glad we got to talk about how great our Lord is that he has given you life. And don’t worry Mz. Jane they will take that tube out soon enough! I caught you trying to pull it out today! ;)

  2. Onya Kor on said:

    May the Lord bestow many more blessings on your little one. As the old saying goes, He feeds every little bird, but He does not throw it into the nest. Please, please remember to take good care of yourselves. Your systems are stressed as well. Mommy and Daddy, Dyedas and Babunia’s need nurturing from the ups and downs. Jane needs all of you healthy, too. Please don’t forget your walks, your vitamins and some sunshine. We pray for your well-being.

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