Today Jane got off of her last cardiac medication and seems to be doing well (She was on cardiac meds to help with the function and efficiency of her heart). The idea that the doctors discontinued the meds means that she is progressing and her heart is healing and beginning to function on its own. Her heart rate has come down to a reasonable rate (140’s) as they have continued to pull more fluid out of her body. The doctors are happy with her decreased heart rate because that also means that her heart has more time to fill with blood and send out to the body; its all about having an efficient pumping system with her “new and improved” plumbing system. A new PICC line was placed today in her left arm and the PICC team was successful. Normally, this type of procedure is fairly easy, but with Jane it’s a challenge. She is so tiny and her veins are hard to come by, but it went well. Her foley was removed today, yeah!! Now she gets to pee and poop right into her diapers, which means more work for me. I love it! Jane is continuing her feeds, MBM they call it–Mothers Breast Milk and she is digesting it and pooping so we know her digestive system is working 🙂 Hopefully over the next few days we will see great improvements with her liver since her new medication was started today to give it a boost. Those seem to be the latest and greatest updates with Jane.
Daniel and I have really been enjoying our play time with her. We love when she is awake and sometimes try and wake her up when she is asleep. ( I know, I know…she needs her rest, but…. 🙂 I love when she sticks out her tongue and yawns!
And we thank the Lord for His amazing mercy. and care He has given to this family. All the glory is yours Lord. We thank you and are humbled by your goodness and miracle of Janes gaining health. Our tears are tears of joy. Love hearing your joy of getting to know your daughter. Your faith and the faithful prayers of many were always in a direct line to Gods ears and He upheld you when you could barely be held together. We continue to pray for Jane and thank the Lord for all He has given thus far. Love in Christ Jesus, David &Tanya Pavloff
WHAT WONDERFUL NEWS ABOUT THE PROGRESS OF PRECIOUS JANE. I AM SO HAPPY THAT YOU ARE THERE AND ABLE TO GET INVOLVED IN HER LIFE IN SUCH PRACTICAL WAYS. LIKE FEEDING AND CHANGING HER DIAPER. I WILL CONTINUE TO PRAY FOR YOU AND PRAISE GOD FOR HIS BLESSED HANDIWORK IN YOUR LIVES. XO BONNIE
Such awesome news!!! Thank you Lord for Jane’s wonderful improvements and let her continue to make positive steps forward. Even if they’re tiny steps.. we’ll take them!! We all give many many thanks to the Lord for His miracles on Jane.
And you guys are such amazing parents! I loved reading how you try to wake her up… that’s too precious. Jane is so lucky to have you as Daddy and Mommy 🙂